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Who Pays for the Register
The cost of disability data collection rarely falls on the people who benefit from the numbers.
- Measure
- Who Pays for the Register
- Where it bites
- Data collection
- Signed off by
- Employer, employee or the state
- Order of cost
- Collection cost

The burden is not neutral
When an employer runs a staff disability disclosure survey, someone pays for it — and it is almost never the employer's finance team that feels the weight. The real cost lands on disabled employees who must decide whether to disclose, explain, re-explain every time HR turns over, and trust that data will be used to remove barriers rather than manage them out.
The state has an interest in workforce disability statistics but funds the infrastructure patchily. Large employers are expected to monitor and report; small ones largely are not. The result is a dataset with systematic gaps at exactly the point where disabled workers are most concentrated and least protected.
Data collection also costs in a second, subtler sense: the design of the instrument. A disclosure survey that lists impairment categories rather than asking about barriers tells you what conditions people have, not whether they can do the job without friction. Building the right question costs more — it requires time, expertise and genuine consultation. Organisations that treat monitoring as a compliance tick rarely spend that money.
There is a third payer: anyone who relies on aggregate data to commission services, set targets or allocate resource. When workforce data is collected only at the point of hire, commissioners are working with numbers that show arrival but not experience. The register looks full; the picture is wrong.
The question of who pays for the register is really a question of who the register is for. Follow the cost, and the answer is usually: not disabled people.
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